Thursday, July 22, 2010

To Dispel a Theory...

Some people I have encountered wondered, "Can't a person live forever on dialysis??" I will tell you...the answer is NO.
First of all, I can tell you right here and now, because I had dialysis today, I am cramping, from head to foot, because I had so much extra water weight that had to be removed. The more water weight you remove on dialysis, the more it hurts, and I do mean HURTS!!!
I've been doing this for three years now...have been on both ends of the water spectrum, and I hate both extremes, though I will admit I tend to prefer the dehydrated end, because I look better that way.
However, if only I could remove my own fluid the way I used to do, I would be such a happy camper!!!
There is a catch to getting a transplant, and please don't think I'm complaining. I am merely sharing with you a fact. The house has to be extra spic-n-span clean, and I cannot have even one small molecule of infection in my body, because if I do, there will be no transplant. On my end, things have to be super-duper-perfect, in every possible way!! This has had my nerves in a million knots for the last few months. While this will all be worth it, getting ready for a transplant is no small job.
I hope you understand that I'm just sharing some facts with you. I am NOT complaining about getting a transplant. Lord knows, I will be the happiest woman in the world when that transplant finally happens, next month (Lord willing!!).
Thanks for understanding.
xoxo

Nov., 1986...Before I had PKD.




I maybe should say, this was before I knew I had PKD...in November, 1986, the day after Thanksgiving. I had just recovered from a brief struggle with anorexia, and I thought I was going to be doing great. I thought all was back to normal.
Little did I know, that less than a year later, I'd receive a diagnosis that would eventually turn my whole world upside-down and backwards.....
Did I screw my own body up by doing all that dieting and exercising??? I wonder to this day.