I've heard every excuse from A to Z, why no one can be my donor, and save me from having to do dialysis and have essentially a lower quality of life all the way around.
Let's see...there's the ones who are afraid that something will happen to them if they give me a kidney... Never mind that they have two good ones, and I have none whatsoever.
Then there's the ones who are afraid that they might be the wrong blood type. Transplant centers the world over check for these things. I am A+, but can accept an organ from an A+, A-, O+, and/or O-. Got it? Nothin' to be afraid of there!
Then there's the ones who say, "Well, can't a person live, like, forever, on dialysis?" Uh....sure...but why in God's name would a SANE, 39 year-old, WANT to live forever on dialysis??? Not only that, but NO...people don't always live forever on dialysis. 18% of people who are waiting for a transplant, die within the long, long five years it generally takes before a cadaver donor becomes available. Too many people needing a transplant, and not enough donors...has created a helluva problem with the damn waiting list!!!!
There's the people who are just plain chicken.
Hey...I'll lay you 10 to 1 that those chickens could never live with no kidneys, as I have done (and barely, I might add!) for almost two years!! I'll just bet....
This week, apparently, I'm anemic again. This has put quite a damper on my life. I'm also...possibly dehydrated...either that or I'm getting dizzy as hell because I'm anemic! At more than one point today, I had to stop, and I was so dizzy that I got a splitting headache until the dizziness let up. Well, DAMN! And no one is brave enough to be my donor????
FYI: I did get an email the other night, from an out-of-state donor...at least he says he was approved to be a donor where he lives...it's just a matter of him calling Sharp, and me getting Medi-Cal already here....this might just work out...as long as he doesn't run up an unrealistic travel bill and expect me to take care of it, because that I can NOT do!!
Forgive me for ranting. I'm just sick and tired of dialysis, and all the ways that it puts a damper on my lifestyle... Know what I mean??
P.S.: **As I was saying the other night...I DO, VERY much, ♥ sweet surprises...so, maybe someone reading my blog will be moved enough to...well...NOT YOU, necessarily!! Just put the word out for me, PLEASE, because that's what we need to do...network, network, network. That's one of the reasons I started this blog in the first place.
Now then. Time to run, I think.
I'll be back...not sure when, though.
Love ya!
xoxoxo
(poofski)
Thursday, September 17, 2009
Tuesday, September 15, 2009
I ♥ Surprises!!
So I checked my email tonight, after having been out for awhile...and sure enough, I have another possible donor. He is out of state, so this may take a little time...but, it sounds very promising (again). I'm not holding my breath this time, but I'm keeping this situation in my prayers, and hope this is the right donor for me!!
I will keep you posted.
Gotta run (again) for now!
Love ya!
xoxoxoxoxo
I will keep you posted.
Gotta run (again) for now!
Love ya!
xoxoxoxoxo
Sunday, September 13, 2009
QUICK Update~~
It's...((Yawn...stretch...)) been a while since I posted here, hasn't it?
So, here's a quick update.
I had my gallbladder ultrasound Thursday, but still have not heard the results.
I presume that'll happen soon, especially if there's something going on that needs attention. It was an X-ray not only of my gallbladder, but also of my spleen, pancreas, and polycystic liver. (Yes, part of PKD, sometimes, is that the liver ends up being polycystic too....BUT, whereas PKD leads ultimately to kidney failure, sooner in some people than in others, polycystic livers ordinarily do not fail...I'm always concerned about it, nonetheless.)
Yesterday, I thought it was tailbone season again...and/or Intractable Sciatica season. One year ago, it was, I clearly remember, going Greeting-Card shopping at CVS, and I had already put up with not being able to walk for about a week or so, due to my tailbone being debilitatingly sore, and I was getting damn tired of it too...so, while shopping for cards, I meandered over to the Pharmacy, to the walkers... I was sick of having to hold on to everything and everyone that I could get a hold of, just to be able to walk, and even that didn't alleviate the pain...it just made it easier to walk. The crutches made it even easier to walk, as I then always had something to lean on when walking or standing. I am telling you, last year, that tailbone gave me more grief, and more pain and suffering, than anyone under 40 that I know of, and even more so than some people over 40!!! This year, this pain seems to be in the left leg, but as of yet has not impaired my ability to walk and be productive, so thank God for that!! I somehow feel like I owe it all to being back in San Diego. Californians are so optimistic...so upbeat...it's hard to wallow in my own pain like I was in Cleveland last year!!
Today, my leg seems to be better. But, I've been spending so much time cleaning...cleaning...cleaning...that I'm getting exhausted.
With that, I'll be back later this week.
Love ya!!
xoxo
So, here's a quick update.
I had my gallbladder ultrasound Thursday, but still have not heard the results.
I presume that'll happen soon, especially if there's something going on that needs attention. It was an X-ray not only of my gallbladder, but also of my spleen, pancreas, and polycystic liver. (Yes, part of PKD, sometimes, is that the liver ends up being polycystic too....BUT, whereas PKD leads ultimately to kidney failure, sooner in some people than in others, polycystic livers ordinarily do not fail...I'm always concerned about it, nonetheless.)
Yesterday, I thought it was tailbone season again...and/or Intractable Sciatica season. One year ago, it was, I clearly remember, going Greeting-Card shopping at CVS, and I had already put up with not being able to walk for about a week or so, due to my tailbone being debilitatingly sore, and I was getting damn tired of it too...so, while shopping for cards, I meandered over to the Pharmacy, to the walkers... I was sick of having to hold on to everything and everyone that I could get a hold of, just to be able to walk, and even that didn't alleviate the pain...it just made it easier to walk. The crutches made it even easier to walk, as I then always had something to lean on when walking or standing. I am telling you, last year, that tailbone gave me more grief, and more pain and suffering, than anyone under 40 that I know of, and even more so than some people over 40!!! This year, this pain seems to be in the left leg, but as of yet has not impaired my ability to walk and be productive, so thank God for that!! I somehow feel like I owe it all to being back in San Diego. Californians are so optimistic...so upbeat...it's hard to wallow in my own pain like I was in Cleveland last year!!
Today, my leg seems to be better. But, I've been spending so much time cleaning...cleaning...cleaning...that I'm getting exhausted.
With that, I'll be back later this week.
Love ya!!
xoxo
Wednesday, September 9, 2009
Getting over Jet Lag, once and for all, I think.
The jet lag was roughest going eastward, because my body just didn't want to get off of California time.
So, coming back, I was just tired from all the walking, and flying. Being back where my body didn't want to leave (apparently), was a piece of cake, as far as actual jet lag. I was just having leftover tiredness from the jet lag I had going eastward.
Huh????? What's this????!!! Either the Blogger is messed up, or my blog has had 11,000 views in one day?????????!!!! Could it be??????
11,000 views, and no comments??????? DAMN!!!!
Oh well. Just thought I'd check in.
Tomorrow, I have a gallbladder ultrasound. See, I had a gallbladder attack in June, 2003. That's what Scripps told me. But then I went to Kaiser for a second opinion, and they told me I wasn't having a gallbladder attack. Because Kaiser was where I had my insurance at the time, I therefore didn't have my gallbladder taken out. Now, I'm having a burning feeling in my stomach, that my new G.I. doctor says might be the gallbladder. An ultrasound will tell us for sure. In a way, I hope it is, because then I can finally have my gallbladder out, and maybe hopefully have a much more comfortable life. Maybe even keep all my food and meds down...that would be lovely!!
OK...gotta run.
Later, darlin'!!!!
xoxo
So, coming back, I was just tired from all the walking, and flying. Being back where my body didn't want to leave (apparently), was a piece of cake, as far as actual jet lag. I was just having leftover tiredness from the jet lag I had going eastward.
Huh????? What's this????!!! Either the Blogger is messed up, or my blog has had 11,000 views in one day?????????!!!! Could it be??????
11,000 views, and no comments??????? DAMN!!!!
Oh well. Just thought I'd check in.
Tomorrow, I have a gallbladder ultrasound. See, I had a gallbladder attack in June, 2003. That's what Scripps told me. But then I went to Kaiser for a second opinion, and they told me I wasn't having a gallbladder attack. Because Kaiser was where I had my insurance at the time, I therefore didn't have my gallbladder taken out. Now, I'm having a burning feeling in my stomach, that my new G.I. doctor says might be the gallbladder. An ultrasound will tell us for sure. In a way, I hope it is, because then I can finally have my gallbladder out, and maybe hopefully have a much more comfortable life. Maybe even keep all my food and meds down...that would be lovely!!
OK...gotta run.
Later, darlin'!!!!
xoxo
Monday, September 7, 2009
California, I iz baaaaaaaack! :-)
Just lettin' ya know I made it back here safely.
I literally just barely made the first plane on time (By the way), because of the long line at the checkpoint. Cleveland should have separate checkpoint lines for every airline...not combine three or four in one damn line! Geez! Then, I think I lost one of my green "Donate Life" bracelets going through security. I was going to give my "tweetheart" one. Oh well. I have a lot more, but I was too tired to get them packed up to mail. I'll do that when I go back to Cleveland.
It was raining in Cincinnati, so that first plane had to circle around Greater Cincinnati, and possibly part of Kentucky too...then had to land from the south, where it wasn't raining. In other words, he had to circle around so he wasn't in the rain belt...and could land safely. That was quite a trip, I must say! Flying around Greater Cincinnati, in the rain, at 7:45AM. And that was only my second impression of Cincinnati...the first being 12 years ago, when my first husband and I went to see the Reds play, and we stayed in a cute little inn, in Kentucky, just past the state line. Anyway...thank goodness my first plane got to the airport on time in spite of the rain, because I'd have been having kittens if I missed my connecting flight.
The second plane was a dream. I even slept, I think, at least half of the way here.
And, it's a lovely, lovely day here in San Diego.
Last week, in Cleveland, I got a lot done that I wanted to. We visited Hardee's, the thrift store, Wal-Mart (twice), Costco, and a few other stores that I wanted to check out. I kept up with my walking, going over to Bexley Park almost every evening...but, early evening, as you do NOT walk through South Euclid after dark...you just don't. And, my room, that looked like it had been hit by a tornado, is a little cleaner. I got six boxes ready to be mailed here, to myself, I presume by way of Dad tomorrow. When I do last-minute cleaning and packing, I really do last-minute cleaning and packing!! I was up all night doing that...Maybe that explains why I packed my San Diego keys in one of those boxes...I can't believe I did that!!!!!!!
Oh well. It's good to be back, in "America's Finest City"!!!
Gotta run for now.
Laytah, darlin'!
(Poof)
I literally just barely made the first plane on time (By the way), because of the long line at the checkpoint. Cleveland should have separate checkpoint lines for every airline...not combine three or four in one damn line! Geez! Then, I think I lost one of my green "Donate Life" bracelets going through security. I was going to give my "tweetheart" one. Oh well. I have a lot more, but I was too tired to get them packed up to mail. I'll do that when I go back to Cleveland.
It was raining in Cincinnati, so that first plane had to circle around Greater Cincinnati, and possibly part of Kentucky too...then had to land from the south, where it wasn't raining. In other words, he had to circle around so he wasn't in the rain belt...and could land safely. That was quite a trip, I must say! Flying around Greater Cincinnati, in the rain, at 7:45AM. And that was only my second impression of Cincinnati...the first being 12 years ago, when my first husband and I went to see the Reds play, and we stayed in a cute little inn, in Kentucky, just past the state line. Anyway...thank goodness my first plane got to the airport on time in spite of the rain, because I'd have been having kittens if I missed my connecting flight.
The second plane was a dream. I even slept, I think, at least half of the way here.
And, it's a lovely, lovely day here in San Diego.
Last week, in Cleveland, I got a lot done that I wanted to. We visited Hardee's, the thrift store, Wal-Mart (twice), Costco, and a few other stores that I wanted to check out. I kept up with my walking, going over to Bexley Park almost every evening...but, early evening, as you do NOT walk through South Euclid after dark...you just don't. And, my room, that looked like it had been hit by a tornado, is a little cleaner. I got six boxes ready to be mailed here, to myself, I presume by way of Dad tomorrow. When I do last-minute cleaning and packing, I really do last-minute cleaning and packing!! I was up all night doing that...Maybe that explains why I packed my San Diego keys in one of those boxes...I can't believe I did that!!!!!!!
Oh well. It's good to be back, in "America's Finest City"!!!
Gotta run for now.
Laytah, darlin'!
(Poof)
Friday, September 4, 2009
No comments?? No kudos??? Hmmmmmm....
I must be doing something wrong. Not since January have I gotten a comment. And I never get a kudos thing.
Either I'm a horrible writer, or no one loves me...or both.
I'm seriously considering quitting this blog, and everything else I have over the Internet, except email.
Yeah, that's it. I'm a horrible writer. My spelling and grammar are close to perfect. But, my writing is just not up to par. I do what I can. But this has been a rough week for me, so forgive my lack of...well, lack of intelligent ideas.
I'll be back in San Diego early Monday. Maybe I'll give it another shot after I'm back out there...that is, presuming my planes don't go down.
Then again...maybe one of my planes will go down, and you'll be spared any more nonsense from me.
Later, gator!
Love ya!
If anyone actually stopped by, THANK YOU!!!!!!!!!!!!!!!!!
If I get a comment off of this one, THANK YOU AGAIN!!!!!!!!!!!!!!!
(poof)
Either I'm a horrible writer, or no one loves me...or both.
I'm seriously considering quitting this blog, and everything else I have over the Internet, except email.
Yeah, that's it. I'm a horrible writer. My spelling and grammar are close to perfect. But, my writing is just not up to par. I do what I can. But this has been a rough week for me, so forgive my lack of...well, lack of intelligent ideas.
I'll be back in San Diego early Monday. Maybe I'll give it another shot after I'm back out there...that is, presuming my planes don't go down.
Then again...maybe one of my planes will go down, and you'll be spared any more nonsense from me.
Later, gator!
Love ya!
If anyone actually stopped by, THANK YOU!!!!!!!!!!!!!!!!!
If I get a comment off of this one, THANK YOU AGAIN!!!!!!!!!!!!!!!
(poof)
Monday, August 31, 2009
You KNEW I'd stop in here during my vacation, didn't ya~~
Yup...I iz here, in Cle-ve-land, visiting my three wonderful furbabies, whose 8th birthday was Saturday. I hear they had a wonderful birthday, and I'm glad for that. This week, I want to keep as busy as I can and not be online too much. But, I just thought I'd come back and let you know I made it here safely.
Saturday, as the plane left California, I cried.
I LOVE YOU, CALIFORNIA, AND I MISS YOU LOTS!! But, I missed my furbabies too. I'll only be here a week, I promise. Hmmmmm...just long enough to get over this jet lag. I had so much I wanted to do today, but I was exhausted with, I presume, jet lag--and my time of the month. I can still clean my room tonight...but going to Wal-Mart, and the thrift store...that'll have to wait till tomorrow. I do have to clean my room, though.
Strange. I was so depressed that I didn't realize it before I went back to San Diego, but I left my room here in such a mess...it looks like it was hit by a tornado. So...my work is cut out for me, here as much as in San Diego, where I get to clean out the guest bedroom when I go back.
By the way, I got here by way of Atlanta after all. Not New York. Last minute change of planes. Yes, planes. Delta had changed everything by the time I got to the airport.
The first kitty I saw was Mup. She was happy to see me, but calm and cool as always. She did sleep with me for a little while last night.
Next was Jerry, Tony, and Velvet. Jerry was absolutely ECSTATIC to see me, and still is. Velvet remembers me. And Tony...well...if you knew Tony like I know him, you wouldn't be surprised to know that he hid under the bed and didn't let me pet him until 10:00 last night. Finally, he kissed me and let me pet him. I think he's starting to warm up to me. Jerry spend part of the night with me too, after Mup was done. Maybe Tony will curl up with me too, by the time I have to fly away again.
These are incredibly smart kitties. And so healthy. What a joy it is to have them!!
Da-YAM, it's chilly here!!!!! Before I left San Diego, it was over 100 degrees. My "tweetheart" told me today that it's not as hot there now (88 degrees on the same patio that got up to 104 the other day), so that's good. But here, it's downright chilly!! Yes, it's a pretty evening--just chilly compared to San Diego (the paper said it was supposed to have gotten up to 70 today, but I don't believe it). My dad told me it was warm here the last few days--then, all of a sudden, just as I was flying in, it got cooler and rainy. Hmmmmmm...so I rained on Cleveland?????? I never thought I could do that!! I should take some of this rain back to California with me. From what I saw on CNN, they/we need it.
And for those who are curious...yes, Jerry still begs me to let him see the "beach" (kitty talk for bleach water, that I use to clean before every dialysis treatment).
Well, as I said, I don't want to wear out my welcome on my own blog here, so off I go. First to try to get my strength back and get into cleaning mode.
Be good, y'all!!! And, if you're in California, I'll be back to join you next week--Labor Day!
Hmmmm...y'know...maybe I should ask. While I'm here, is there anyone in the Cleveland area that I should say hello to for you???? Just curious. The main thing I came for was to visit my handsome/beautiful, brilliant, sweet cats--for their birthday, or close enough to their birthday.
OK, gotta run and read more of "Making Miracles." Anything to keep my brain in gear!
Ta-ta for now!! Love ya!!!
(poof)
Saturday, as the plane left California, I cried.
I LOVE YOU, CALIFORNIA, AND I MISS YOU LOTS!! But, I missed my furbabies too. I'll only be here a week, I promise. Hmmmmm...just long enough to get over this jet lag. I had so much I wanted to do today, but I was exhausted with, I presume, jet lag--and my time of the month. I can still clean my room tonight...but going to Wal-Mart, and the thrift store...that'll have to wait till tomorrow. I do have to clean my room, though.
Strange. I was so depressed that I didn't realize it before I went back to San Diego, but I left my room here in such a mess...it looks like it was hit by a tornado. So...my work is cut out for me, here as much as in San Diego, where I get to clean out the guest bedroom when I go back.
By the way, I got here by way of Atlanta after all. Not New York. Last minute change of planes. Yes, planes. Delta had changed everything by the time I got to the airport.
The first kitty I saw was Mup. She was happy to see me, but calm and cool as always. She did sleep with me for a little while last night.
Next was Jerry, Tony, and Velvet. Jerry was absolutely ECSTATIC to see me, and still is. Velvet remembers me. And Tony...well...if you knew Tony like I know him, you wouldn't be surprised to know that he hid under the bed and didn't let me pet him until 10:00 last night. Finally, he kissed me and let me pet him. I think he's starting to warm up to me. Jerry spend part of the night with me too, after Mup was done. Maybe Tony will curl up with me too, by the time I have to fly away again.
These are incredibly smart kitties. And so healthy. What a joy it is to have them!!
Da-YAM, it's chilly here!!!!! Before I left San Diego, it was over 100 degrees. My "tweetheart" told me today that it's not as hot there now (88 degrees on the same patio that got up to 104 the other day), so that's good. But here, it's downright chilly!! Yes, it's a pretty evening--just chilly compared to San Diego (the paper said it was supposed to have gotten up to 70 today, but I don't believe it). My dad told me it was warm here the last few days--then, all of a sudden, just as I was flying in, it got cooler and rainy. Hmmmmmm...so I rained on Cleveland?????? I never thought I could do that!! I should take some of this rain back to California with me. From what I saw on CNN, they/we need it.
And for those who are curious...yes, Jerry still begs me to let him see the "beach" (kitty talk for bleach water, that I use to clean before every dialysis treatment).
Well, as I said, I don't want to wear out my welcome on my own blog here, so off I go. First to try to get my strength back and get into cleaning mode.
Be good, y'all!!! And, if you're in California, I'll be back to join you next week--Labor Day!
Hmmmm...y'know...maybe I should ask. While I'm here, is there anyone in the Cleveland area that I should say hello to for you???? Just curious. The main thing I came for was to visit my handsome/beautiful, brilliant, sweet cats--for their birthday, or close enough to their birthday.
OK, gotta run and read more of "Making Miracles." Anything to keep my brain in gear!
Ta-ta for now!! Love ya!!!
(poof)
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